Recent Posts
- My Latest Rett Syndrome Challenge: How to Overcome Decision Fatigue
- Rare Disease Groups Win Horizon’s #RAREis Global Advocate Grants
- Going to the Dentist Is No Minor Affair for My Daughter With Rett Syndrome
- Acadia Seeks FDA Approval of Oral Trofinetide as Treatment for Rett
- Parents of Rett Syndrome Teenagers Face Difficult Choices for Their Girls
- List of Rare Diseases Tops 10,000 – and Is Growing – New Analysis Finds
- Celebrating 15 Years of Marriage, in Sickness and in Health
- Unravel, TMA Partner to Find Patients for 1st Trial Testing RVL001
- Making Sure Our Daughter Lives Her Life to the Fullest
- Upper Body Training Improves Motor Skills, Attention Span