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    News

    November 26, 2020November 26, 2020

    Survey Finds COVID-19 Disrupted Care, Well-Being of Rare Disease Patients in Europe

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    November 25, 2020November 25, 2020

    Reverse Rett Hosts Dec. 5 Virtual Big Night In Fundraiser, Benefitting Research

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    November 20, 2020November 20, 2020

    GW Stops ARCH Phase 3 Trial Testing Epidiolex in Children, Adolescents, Due to COVID-19

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    November 19, 2020November 19, 2020

    Latest NORD Webinar Offers Insights on Starting Nonprofit, Patient Registry

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    November 18, 2020November 18, 2020

    Adults With Rett Require Tailored Care Program to Manage Symptoms, Study Says

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    November 13, 2020November 13, 2020

    Rett Animal Model Seen to Share Patients’ Complex Learning Difficulties

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    November 11, 2020November 11, 2020

    Taysha Gene Therapies, Catalent Partner to Advance Gene Therapies for Rett, Other Disorders

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    November 6, 2020November 6, 2020

    ‘Band of Mothers’ Connect to Raise Awareness About Boys With Rett

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    November 4, 2020November 6, 2020

    NORD Hosting ‘RareLaunch’ Workshops to Help Start Rare Disease Non-profits

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    October 30, 2020October 30, 2020

    Rett Syndrome Research Trust Seeks Families for Global Registry

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    Recent Posts

    • mouse study

      Small Molecule Aids Motor Skills, Breathing in Rett Mouse Model

      January 22, 2021

    • coalition, racial disparities

      NORD’s Caregiver Respite Program Continues Through Pandemic

      January 20, 2021

    • Art Contest Salutes Creativity of Rare Disease Communities

      January 19, 2021

    Featured Posts

    New Discovery on X Chromosome Inactivation May Open Treatment Avenues for Rett Syndrome

    July 1, 2020

    X-chromosome inactivation

    Phase 3 Trial of Trofinetide in Girls, Young Women Again Enrolling in US

    June 17, 2020

    trofinetide study update

    Coalition Will Address Racial Disparities in Rare Disease Communities

    June 9, 2020

    coalition, racial disparities

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