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Unity and EU-wide Efforts Focus of Online Rare Disease Meeting

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Eurordis, a Paris-based coalition of national rare disease associations across Europe, hosted its first all-virtual ... Read more

May 19, 2020May 19, 2020

Unity and EU-wide Efforts Focus of Online Rare Disease Meeting

News, syndicated

Eurordis, a Paris-based coalition of national rare disease associations across Europe, hosted its first all-virtual ... Read more

May 15, 2020May 15, 2020

Taysha Raises $30M, Partners with UT Southwestern to Develop Gene Therapies for Rett, Other Disorders

News

Taysha Gene Therapies has raised $30 million and established a partnership with UT Southwestern Medical ... Read more

May 12, 2020May 12, 2020

Rare Diseases Clinical Research Network Opens Online Survey on COVID-19

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The Rare Diseases Clinical Research Network (RDCRN) has opened an online survey to better understand ... Read more

May 8, 2020May 8, 2020

Newron Terminates Sarizotan Development Due to STARS Trial Failure

News

Treatment with sarizotan failed to reduce apnea episodes (breathing stops) while awake compared to a ... Read more

April 28, 2020April 28, 2020

Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say

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While there are few silver linings to the cloud created by COVID-19, the pandemic that ... Read more

April 24, 2020April 24, 2020

Therapy Using ‘Unstable’ Gene Seen to Help Mice in Rett Model

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A form of gene therapy based on providing an unstable version of the MECP2 gene ... Read more

April 22, 2020April 24, 2020

NORD Opens COVID-19 Financial Aid Program for Rare Disease Community

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The National Organization for Rare Disorders (NORD) has opened a financial assistance program for people ... Read more

April 17, 2020April 17, 2020

Altered Nerve Cell Communication Tied to Motor Difficulties of Rett

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Problems with nerve cell communication and adaptation in the brain’s motor cortex is associated with ... Read more

April 10, 2020April 10, 2020

Differences in Metabolism May Aid Rett Syndrome Characterization and Treatment

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Recent Posts

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Featured Posts

Parents of Rett Patients View Deep Brain Stimulation as Viable Option

December 17, 2019

DNA Sequencing Identifies Unusual Genetic Cause of Rett-like Disease in Young Girl

January 17, 2020

FDA, Newron Pharma to Meet in Step to Releasing Results of Sarizotan Pivotal Trial

December 13, 2019

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Rett Syndrome News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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