Recent Posts
- Rett syndrome girls show detectable brain electrical activity changes
- Reflecting on my daughter’s early developmental regression
- Some hand movements linked to injuries, contractures: Study
- Brain organoid study finds MECP2 tied to early nerve cell formation
- FDA puts TSHA-102 gene therapy on fast track for Rett syndrome
- As a Rett syndrome caregiver and parent, I find self-care to be vital
- Taysha raises $150M to support testing of gene therapy, TSHA-102
- TSHA-102 gene therapy leads to improvements for 1st adult patient
- My daughter’s scoliosis prognosis hurts ‘in every fiber of my being’
- Parents of Rett children can identify disease-specific baby babbling