Brian Murphy,  —

Recent Posts

• My Latest Rett Syndrome Challenge: How to Overcome Decision Fatigue
• Rare Disease Groups Win Horizon’s #RAREis Global Advocate Grants
• Going to the Dentist Is No Minor Affair for My Daughter With Rett Syndrome
• Acadia Seeks FDA Approval of Oral Trofinetide as Treatment for Rett
• Parents of Rett Syndrome Teenagers Face Difficult Choices for Their Girls
• List of Rare Diseases Tops 10,000 – and Is Growing – New Analysis Finds
• Celebrating 15 Years of Marriage, in Sickness and in Health
• Unravel, TMA Partner to Find Patients for 1st Trial Testing RVL001
• Making Sure Our Daughter Lives Her Life to the Fullest
• Upper Body Training Improves Motor Skills, Attention Span