Author Archives: Brian Murphy
Recent Posts
- Rare Pediatric, Orphan Drug Status Granted to DepYmed’s Rett Therapy
- Organizations Rally to Help Ukrainian Rare Disease Patients
- We Do Not Talk About Sleepovers
- New Study Highlights Barriers to Dental Care for Rett Patients
- On a ‘Rett Day,’ We Can Only Ride Out the Pain
- Europe Awaits Proposed New Framework for Sharing Health Data
- Klinefelter Syndrome Boys Show Rett Symptoms More Than Believed
- With Some Ingenuity, My Daughter Can Relax in the Water
- Telehealth Added to Latest Digital-friendly NORD State Report Card
- The Kindness of a Golf Pro Enabled Our Daughter to Golf