Recent Posts
- Lack of awareness spurs diagnostic delays for Rett syndrome in males
- Different types of motor disorders often co-occur in Rett syndrome
- FDA signs off on pivotal trial design for NGN-401 gene therapy
- The part I never got used to while raising a child with Rett syndrome
- Aspiration events tied to higher risk of respiratory complications
- Brain activity may be biomarker for Rett treatment response
- Waking up in the middle of the night to care for our late daughter
- Families say access to dental care can improve quality of life
- Design for 2nd part of Rett gene therapy TSHA-102 trial set
- Why our daughter’s 8th-grade promotion is extra meaningful