News

Communication is among top concerns in Rett caregivers survey

Effective communication is a top concern for people affected by Rett syndrome or related disorders, a U.S. caregiver survey has found. Other top concerns for patients include seizures, problems with walking or balancing, loss of function in the hands, and constipation. Recent progress in understanding brain development disorders such…

Acadia to award $50K in Rett Sibling Scholarship program in US

To recognize the hopes and pursuits of the siblings of those with Rett syndrome — while highlighting the disease’s impact on patients’ families — Acadia Pharmaceuticals has established the Rett Sibling Scholarship program for U.S. residents. The new program will award 10 higher education scholarships of $5,000…

How to support Rett community during awareness month in October

October is Rett Syndrome Awareness Month, and the International Rett Syndrome Foundation (IRSF) is encouraging people to go “All In” to support patients and boost critical research. “This October during Rett Syndrome Awareness Month, there are so many ways you can join IRSF to help increase awareness of Rett syndrome…