The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare…
Articles by Mary Chapman
To raise awareness of the rare disease communities and celebrate the creativity of its members, the EveryLife Foundation for…
The Rare Diseases Clinical Research Network (RDCRN) has opened an online survey to better understand how the…
The National Organization for Rare Disorders (NORD) has opened a financial assistance program for people in rare disease community…
Beginning on Feb. 29, Rare Disease Day, chapters from notable scientific books and clinical review articles covering rare disorders will…
An abundance of events are afoot around the world to mark Rare Disease Day 2020 on Feb. 29. The…
In partnership with the Rett syndrome community, Newron Pharmaceuticals has launched a groundbreaking International Rett Syndrome Burden…
From social media efforts to lighting public attractions purple, efforts are underway to observe Rett Syndrome Awareness Month.
A highly accomplished clinician and researcher, Dominique Pichard brings impressive credentials to her role as the International Rett…
Two scientists will receive a total of $850,000 to advance treatment and diagnostic projects in Rett syndrome and MECP2…