Recent Posts
- The part I never got used to while raising a child with Rett syndrome
- Aspiration events tied to higher risk of respiratory complications
- Brain activity may be biomarker for Rett treatment response
- Waking up in the middle of the night to care for our late daughter
- Families say access to dental care can improve quality of life
- Design for 2nd part of Rett gene therapy TSHA-102 trial set
- Why our daughter’s 8th-grade promotion is extra meaningful
- Smaller brain volumes in Rett girls tied to clinical severity: MRI study
- Taysha, FDA agree on next steps of REVEAL trial for Rett gene therapy
- How strange to be having free time after years without it