Recent Posts
- A benefit concert to celebrate the memory of Cammy Babiarz
- Long-term Daybue led to continual improvements in patients: Studies
- IRSF names 3 centers of excellence for Rett clinical care
- The decisions (some instant, some later) to do right by our daughter
- Family support weighs heavily in doctors’ decisions on ventilation
- CNM-Au8 seen to promote nerve health, survival in Rett cell model
- The coping tools that are helping as I grieve my daughter’s passing
- Gene therapy TSHA-102 showing safety, benefits in adults and kids
- Traveling to New York without worrying about accessibility issues
- RSRT launches program to advance genetic therapies for Rett