To recognize the hopes and pursuits of the siblings of those with Rett syndrome — while highlighting the disease’s…
Articles by Mary Chapman
The Assistance Fund (TAF), an independent patient assistance organization that helps patients and families with out-of-pocket healthcare costs, has…
As part of its Project Seva, Vezbi Community Super App is supporting the International Rett Syndrome Foundation (IRSF)…
From starting a Facebook fundraiser to handing out personalized information cards about Rett syndrome, supporters worldwide are marking…
The National Organization for Rare Disorders’ (NORD) “Living Rare, Living Stronger Patient and Family Forum” is back in person…
To support scientific investigations that seek therapies and a cure for Rett syndrome, the International Rett Syndrome Foundation…
Supporters worldwide are marking Rett Syndrome Awareness Month, set aside each October to bring attention to Rett syndrome, a…
At its first virtual investor event, biotech company Centogene set a bold mission: to cure 100 rare diseases…
To help patient advocacy leaders and their partners better understand how global health statistics codes — known as ICD codes…
Those who wish to gain practical tools for living optimally with rare diseases are encouraged to attend the annual…