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Recent Posts
- If my late daughter could’ve had one skill back, what would it be?
- Early speech, vocalization changes may signal Rett syndrome: Study
- Study sheds new light on molecular mechanisms contributing to Rett
- Cammy’s first Communion was a special bonding experience
- Rett gene therapy NGN-401 safe, effective in preclinical models
- Trial protocol of Rett gene therapy now only using low dose: Developer
- An adaptive bike gave my late daughter a sense of normalcy
- Benefits seen with Daybue in Rett girls, ages 2-4, in DAFFODIL trial
- Marvel to seek FDA’s orphan drug status for MB-204 in Rett
- Flying with Cammy, our superhero, on her 16th birthday