Author Archives: Jackie Babiarz

My Daughter Is in Good Hands at Her School

At every single curriculum night, parent-teacher conference, and Individualized Education Plan meeting, I cry. But I’m not crying for the reasons others might suspect. Instead, I cry tears of joy and appreciation that my daughter, Cammy, in in such good hands at her school. Handing over a child…

Seeing Purple in October for Rett Syndrome Awareness Month

Ribbons of various colors help to increase social awareness of numerous disabilities, illnesses, and causes. Purple is the color designated for Rett syndrome. Governors in several U.S. states have signed proclamations declaring October to be Rett Syndrome Awareness Month. The International Rett Syndrome Foundation (IRSF) has set a goal…

When Rett Symptoms Change

My 12-year-old daughter, Cammy, has Rett syndrome. Some days, Rett syndrome has Cammy. During the early-onset stage, which typically occurs between 6 and 18 months of age, children may experience abnormal hand movements, difficulty sitting independently, and speech or language problems. Cammy was no different. Repetitive hand movement…

Back-to-School Shopping for My Special Needs Child

When I was young, back-to-school shopping motivated me to get excited for the upcoming school year. My best friend, Dana, and I started shopping for supplies together in sixth grade, when our parents let us cross the busy street to Target by ourselves, and continued through high school. It was…

How Our Special Needs Family Travels More Efficiently

The first step is admitting you have a problem, right? My name is Jackie, and I’m fanatical when it comes to preparing for a vacation. It’s unclear whether this compulsion would have presented if we’d had a “typical” family, or if it only manifested because of my daughter Cammy’s Rett…