Author Archives: Jackie Babiarz

My Daughter Has Adapted to My Husband Working From Home

The COVID-19 pandemic has changed many family dynamics. Those who used to travel or work in an office have been working from home for the past 20 months, which means couples have spent more time together lately than ever before. My family is no exception, as my husband,…

A Rare Disorder’s Ripple Effect on Family

There are only a handful of people I describe as “someone you want on your team.” My 17-year-old niece, Linden, is one of those people. Among all the perks of marrying my husband, becoming Linden’s aunt is one of them. I met Linden on her first…

How to Make Halloween More Inclusive

Halloween should be fun and not stressful. However, for many years it was neither fun for us nor stress-free. My daughter, Cammy, has Rett syndrome, and we were faced with how to deal with a child with special needs at Halloween. Cammy,…

My Daughter Is in Good Hands at Her School

At every single curriculum night, parent-teacher conference, and Individualized Education Plan meeting, I cry. But I’m not crying for the reasons others might suspect. Instead, I cry tears of joy and appreciation that my daughter, Cammy, in in such good hands at her school. Handing over a child…

Seeing Purple in October for Rett Syndrome Awareness Month

Ribbons of various colors help to increase social awareness of numerous disabilities, illnesses, and causes. Purple is the color designated for Rett syndrome. Governors in several U.S. states have signed proclamations declaring October to be Rett Syndrome Awareness Month. The International Rett Syndrome Foundation (IRSF) has set a goal…