The IncRETTibles – a Column by Jacqueline Babiarz

I Cycle Through the Stages of Grief Due to My Daughter’s Rett Syndrome

I used to think the stages of grief — denial, anger, bargaining, depression, and acceptance — only…

How We Responded During the Dark Days of Our Daughter’s Diagnosis

I was 31 years old and eight months pregnant when our daughter Cammy, not yet 2, was diagnosed with Rett syndrome. Cammy’s grandparents picked her up for a sleepover, and that night, my husband, Billy,…

Reflecting on How I Got Here: Welcome to ‘The IncRETTibles’

If you have a child that is diagnosed with a rare disorder, you’ll likely find yourself asking questions like, “How did I get here?” I’ve heard people say that “God only gives you what you can handle.” Well, apparently, God thinks I’m a badass, because…