Shortly after our daughter Cammy passed away on Dec. 13 due to complications of Rett syndrome, we were approached by Joe Kish, the assistant principal at Franklin Middle School, our youngest daughter Ryan’s school in Wheaton, Illinois. He asked about designating Cammy Can, the organization we created to…
This Saturday, April 29, our family will host our 11th annual Cammy Can’s Cinderella Story fundraiser for the International Rett Syndrome Foundation in honor of our daughter Cammy, who was diagnosed with Rett syndrome in 2011 when she was 20 months old. Over the past 11 years…
When our oldest daughter, Cammy, was diagnosed with Rett syndrome in 2011, we knew that the only thing we could control was raising money for research, care, and a cure. So we hit the ground running, literally and figuratively, turning anything we could into a fundraising opportunity.
I vividly remember reading an article about the late Boston Marathon icon Dick Hoyt. It was 2005, and I was dating my now husband, Billy, the father of our two beautiful girls, Cammy and Ryan. I sent him the article, knowing he’d love it, too, as he was…
In April, we will attend our fifth International Rett Syndrome Foundation (IRSF) conference since 2011, when our daughter Cammy was diagnosed with Rett syndrome at 20 months old. We have attended each conference with open hearts and minds. We have specific goals each year, but our overall agenda has…
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