Children with Rett syndrome typically go through a regression in their development between the ages of 6 and 18 months, but I didn’t notice Cammy, our daughter with Rett, regressing that soon. Instead, I saw some slower development early and more of a stagnation of skills when…
On my fifth birthday, I closed my eyes and wished for a two-wheeler with a banana seat and streamers coming out of the handlebars. I blew out the candles. A couple weeks later, on Christmas, the bicycle appeared. On my 11th birthday, I closed my eyes and wished that my…
When our daughter Cammy was almost 2 years old, she was diagnosed with a rare disorder called Rett syndrome. Among the things Rett can steal from our children is their voice. In our community, we often play a game in which we ask, “If our child could have…
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