Recent Posts

• CSS still relevant at assessing Rett syndrome disease severity, concerns
• Lack of awareness spurs diagnostic delays for Rett syndrome in males
• Different types of motor disorders often co-occur in Rett syndrome
• FDA signs off on pivotal trial design for NGN-401 gene therapy
• The part I never got used to while raising a child with Rett syndrome
• Aspiration events tied to higher risk of respiratory complications
• Brain activity may be biomarker for Rett treatment response
• Waking up in the middle of the night to care for our late daughter
• Families say access to dental care can improve quality of life
• Design for 2nd part of Rett gene therapy TSHA-102 trial set