The IncRETTibles
— Jacqueline Babiarz

Things escalate quickly in our house. What we thought would be another typical day last Friday turned into us calling 911 and admitting our 12-year-old daughter, Cammy, to the hospital. I kept Cammy home from school that day because…

When my daughter Cammy, 12, made it her goal to skate with professional hockey player Duncan Keith, the results exceeded all of our expectations. Cammy’s goal, which I shared on social media, was chosen to be featured…

In preparation for the 2008-2009 hockey season, the Chicago Blackhawks created a marketing campaign called “One Goal.” Players and staff members stated their personal goals for the year to showcase the individuality of each team member. In 2015,…

A couple days after my daughter Cammy turned 3, she went straight from early intervention to school. I had prepared her for the transition, but I was not fully prepared. I told Cammy…

At 2:45 p.m. on Jan. 7, 2011, we received a phone call confirming that our daughter Cammy has Rett syndrome. Since then, our lives haven’t been the same. We’ve grown so much in the past 11 years.

When you have a child with special needs, part of the grieving process is acceptance. I don’t mean accepting your child’s diagnosis of Rett syndrome. I’m talking about accepting your new normal, and accepting the decisions you…

Have you ever searched for a gift for nonverbal, nonambulatory child who can’t use their hands? Not much shows up. People with Rett syndrome are difficult to shop for. When my daughter Cammy was younger, stuffed animals…

In 2019, my two daughters, who are two years apart, attended different schools. My neurotypical daughter Ryan’s school had a winter concert, where all grades sang songs prepared during music classes. My older daughter, Cammy, who has…

On my fifth birthday, I closed my eyes and wished for a two-wheeler with a banana seat and streamers coming out of the handlebars. I blew out the candles. A couple weeks later, on Christmas, the bicycle appeared. On…

When your child is nonverbal and unable to use her body purposefully, it’s intriguing to open an email from her teacher that reads, “Your child has a chance to be in the school’s fall play.” Cammy is…

The COVID-19 pandemic has changed many family dynamics. Those who used to travel or work in an office have been working from home for the past 20 months, which means couples have spent more time together lately…

When our daughter Cammy was almost 2 years old, she was diagnosed with a rare disorder called Rett syndrome. Among the things Rett can steal from our children is their voice. In our community, we often play…