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August 28, 2020August 28, 2020

AVXS-201, Gene Therapy for Rett, Again Moving Toward Clinical Trial, AveXis Says

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Most animal studies needed to support plans to move AVXS-201 — AveXis’ investigational gene therapy for ... Read more

August 27, 2020August 27, 2020

Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input

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Raremark, an online rare disease patient community, has launched a digital platform called Xperiome, aimed ... Read more

August 26, 2020August 26, 2020

Parents of Rett Children in Spain Struggle With Healthcare Access, Time Management, Study Reports

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Parents of children with Rett syndrome face difficulties with healthcare access, time management, bureaucracy, and ... Read more

August 21, 2020August 21, 2020

Molecular Switch Inactivates X Chromosome, May Provide Insight Into Rett

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To better understand X-linked disorders such as Rett syndrome, researchers discovered an enzyme called DCP1A ... Read more

August 19, 2020August 19, 2020

EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US

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The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to ... Read more

August 14, 2020August 14, 2020

New Streaming Channel Showcases Rare Disease Films

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August 12, 2020August 12, 2020

DNA Methylation Patterns Before Birth and After May Help in Understanding Rett

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August 7, 2020August 7, 2020

Taysha Raises $95M to Help Speed Clinical Development of Gene Therapies

News

Taysha Gene Therapies received $95 million in funding that will support the clinical development of ... Read more

July 24, 2020July 24, 2020

Novel Function of MeCP2 Protein Could Be Route to Rett Therapy, Study Suggests

News

Mutations in the MECP2 gene, which lead to most cases of Rett syndrome, prevent the ... Read more

July 22, 2020July 24, 2020

High Stress Levels Found in 40% of Parents Caring for Rett Child in Italy

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Note: This story was updated July 24, 2020, to note that Rett affects mostly girls ... Read more

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AVXS-201, Gene Therapy for Rett, Again Moving Toward Clinical Trial, AveXis Says

August 28, 2020
Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input

August 27, 2020
Parents of Rett Children in Spain Struggle With Healthcare Access, Time Management, Study Reports

August 26, 2020

Featured Posts

New Discovery on X Chromosome Inactivation May Open Treatment Avenues for Rett Syndrome

July 1, 2020

Phase 3 Trial of Trofinetide in Girls, Young Women Again Enrolling in US

June 17, 2020

Coalition Will Address Racial Disparities in Rare Disease Communities

June 9, 2020

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Rett Syndrome News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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