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May 12, 2020May 12, 2020

Rare Diseases Clinical Research Network Opens Online Survey on COVID-19

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The Rare Diseases Clinical Research Network (RDCRN) has opened an online survey to better understand ... Read more

May 1, 2020May 1, 2020

NORD Webinar Outlines COVID-19 Response on Financial, Policy Fronts

April 28, 2020April 28, 2020

Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say

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While there are few silver linings to the cloud created by COVID-19, the pandemic that ... Read more

April 22, 2020April 24, 2020

NORD Opens COVID-19 Financial Aid Program for Rare Disease Community

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The National Organization for Rare Disorders (NORD) has opened a financial assistance program for people ... Read more

NORD’s Advice on COVID-19: You’re Stronger Than You Think

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First, the bad news: If you’re one of the 30 million or so Americans with ... Read more

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Recent Posts

Taysha Raises $30M, Partners with UT Southwestern to Develop Gene Therapies for Rett, Other Disorders

May 15, 2020
Rare Diseases Clinical Research Network Opens Online Survey on COVID-19

May 12, 2020
Newron Terminates Sarizotan Development Due to STARS Trial Failure

May 8, 2020

Featured Posts

Parents of Rett Patients View Deep Brain Stimulation as Viable Option

December 17, 2019

DNA Sequencing Identifies Unusual Genetic Cause of Rett-like Disease in Young Girl

January 17, 2020

FDA, Newron Pharma to Meet in Step to Releasing Results of Sarizotan Pivotal Trial

December 13, 2019

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