December 2, 2020December 2, 2020 NORD Push for Rare Disease Advisory Councils Focus of Dec. 16 Public Meeting News, syndicated ... Read more
November 26, 2020November 26, 2020 Survey Finds COVID-19 Disrupted Care, Well-Being of Rare Disease Patients in Europe News, syndicated ... Read more
November 19, 2020November 19, 2020 Latest NORD Webinar Offers Insights on Starting Nonprofit, Patient Registry News, syndicated ... Read more
November 4, 2020November 6, 2020 NORD Hosting ‘RareLaunch’ Workshops to Help Start Rare Disease Non-profits News, syndicated ... Read more
October 28, 2020October 28, 2020 UK Organization ‘Same But Different’ Announces ‘Glimmer of Hope’ Photo Contest Winner News, syndicated ... Read more
October 21, 2020October 21, 2020 Telehealth ‘Helpful’ Alternative to In-person Care, Rare Disease Patients Say News, syndicated ... Read more
October 9, 2020October 9, 2020 Same But Different Asks Public to Vote on ‘Glimmer of Hope’ Calendar Photos News, syndicated ... Read more
September 29, 2020September 29, 2020 Efforts Continue Beyond Awareness Month to Expand Newborn Screening Panels in US News, syndicated ... Read more
September 4, 2020September 3, 2020 Same But Different Photo Contest Celebrates People With Rare Diseases News, syndicated ... Read more
August 27, 2020August 27, 2020 Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input News, syndicated ... Read more
