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    December 2, 2020December 2, 2020

    NORD Push for Rare Disease Advisory Councils Focus of Dec. 16 Public Meeting

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    November 26, 2020November 26, 2020

    Survey Finds COVID-19 Disrupted Care, Well-Being of Rare Disease Patients in Europe

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    November 19, 2020November 19, 2020

    Latest NORD Webinar Offers Insights on Starting Nonprofit, Patient Registry

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    November 4, 2020November 6, 2020

    NORD Hosting ‘RareLaunch’ Workshops to Help Start Rare Disease Non-profits

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    October 28, 2020October 28, 2020

    UK Organization ‘Same But Different’ Announces ‘Glimmer of Hope’ Photo Contest Winner

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    October 21, 2020October 21, 2020

    Telehealth ‘Helpful’ Alternative to In-person Care, Rare Disease Patients Say

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    October 9, 2020October 9, 2020

    Same But Different Asks Public to Vote on ‘Glimmer of Hope’ Calendar Photos

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    September 29, 2020September 29, 2020

    Efforts Continue Beyond Awareness Month to Expand Newborn Screening Panels in US

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    September 4, 2020September 3, 2020

    Same But Different Photo Contest Celebrates People With Rare Diseases

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    August 27, 2020August 27, 2020

    Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input

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    Recent Posts

    • Anavex 2-73 trial results

      Anavex 2-73 Seen to Safely Ease Rett Severity in Women in Phase 2 Trial

      December 18, 2020

    • potential Rett therapies

      Early Work Using Lab-grown ‘Mini-brains’ Identifies 2 Potential Rett Therapies

      December 11, 2020

    • Anavex 2-73, patent

      Anavex 2-73 Treatment for Rett to Receive New US Patent Broadening Coverage

      December 4, 2020

    Featured Posts

    New Discovery on X Chromosome Inactivation May Open Treatment Avenues for Rett Syndrome

    July 1, 2020

    X-chromosome inactivation

    Phase 3 Trial of Trofinetide in Girls, Young Women Again Enrolling in US

    June 17, 2020

    trofinetide study update

    Coalition Will Address Racial Disparities in Rare Disease Communities

    June 9, 2020

    coalition, racial disparities

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