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    Posts by: Hawken Miller

    Hawken Miller

    Hawken Miller

    November 19, 2020November 19, 2020

    Latest NORD Webinar Offers Insights on Starting Nonprofit, Patient Registry

    News, syndicated
    ... Read more
    November 6, 2020November 6, 2020

    ‘Band of Mothers’ Connect to Raise Awareness About Boys With Rett

    News
    ... Read more
    September 29, 2020September 29, 2020

    Efforts Continue Beyond Awareness Month to Expand Newborn Screening Panels in US

    News, syndicated
    ... Read more
    August 14, 2020August 14, 2020

    New Streaming Channel Showcases Rare Disease Films

    News, syndicated
    ... Read more
    May 21, 2020May 21, 2020

    Video Games Connect Chronically Ill Children Isolated at Home, Hospital

    cystic fibrosis, News, syndicated
    ... Read more
    April 1, 2020April 1, 2020

    NORD Partners with ‘Sing Me a Story’ for July 18–20 Living Rare Forum

    News
    ... Read more
    February 28, 2020February 28, 2020

    Advice on Starting Nonprofit Groups for Rare and Other Diseases Focus of NORD Webinar

    News
    ... Read more
    February 10, 2020February 10, 2020

    FDA Efforts to Bring Patients into Treatment Decisions Focus of NORD Webinar

    News
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    Recent Posts

    • mouse study

      Small Molecule Aids Motor Skills, Breathing in Rett Mouse Model

      January 22, 2021

    • COVID-19 Vaccines Pose Little Risk to Rare Disease Patients, FDA, CDC Say

      January 20, 2021

    • coalition, racial disparities

      NORD’s Caregiver Respite Program Continues Through Pandemic

      January 20, 2021

    Featured Posts

    New Discovery on X Chromosome Inactivation May Open Treatment Avenues for Rett Syndrome

    July 1, 2020

    X-chromosome inactivation

    Phase 3 Trial of Trofinetide in Girls, Young Women Again Enrolling in US

    June 17, 2020

    trofinetide study update

    Coalition Will Address Racial Disparities in Rare Disease Communities

    June 9, 2020

    coalition, racial disparities

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