The IncRETTibles
— Jacqueline Babiarz

When our oldest child, Cammy, was diagnosed with Rett syndrome in 2011, family, friends, and strangers rallied around us. Some of our closest friends have found special ways to bring Rett syndrome awareness and Cammy’s journey into their…

October is a triggering month for me. Grief punches me in the gut every day. In October of last year, my oldest daughter, Cammy, went from having a fairy-tale homecoming at school to being hospitalized in the pediatric…

Second in a series. Read part one. Cammy Babiarz took her first ride in a limo during her Make-A-Wish trip in November 2018. (Photo by Jackie Babiarz) Make-A-Wish is an extraordinary organization that grants wishes to…

First in a series. My late daughter, Cammy, was diagnosed with Rett syndrome in 2011, when she was just shy of 2 years old. A year later, someone brought up the idea of referring her to…

My late daughter, Cammy, loved “Sesame Street” because it was the world she imagined for all of us. Kindness, patience, unconditional love, empathy, hope, and acceptance are just a few of the core values our family learned from…

In her short 14 years on earth with us, my daughter Cammy taught my family and many others more about life than we could’ve ever taught her. She was more than a little girl who had…

During all of my school-age years, once August came around, I was ready to go back. I loved summer, but I also loved going back to school to see friends, play on sports teams, and follow a routine. I…

After seven months, we finally have a memorial set for my daughter. Cammy passed away last December, at the age of 14, due to complications of Rett syndrome. It took that long to figure out an…

As a parent, some time-sensitive decisions and actions need to be made when your child passes away. Before the death of my daughter, who had Rett syndrome, I knew that certain details needed to happen immediately. Nevertheless,…

Self-preservation. Boundaries. Circles. Comfort zones. These are practices I’ve learned during grief therapy. I’ve been implementing these coping tools since my oldest daughter, Cammy, passed away from complications of Rett syndrome last December. She was 14.

Not having to make every decision around accessibility and special needs is definitely taking time to get used to. It has been six months since my oldest daughter, Cammy, passed away due to complications of Rett syndrome,…