We can always give something. Some give money to their favorite charity. Others donate their time to distribute goods at a food pantry. Many do a random act of kindness by paying for the person behind them at a drive-thru. People give thoughts, prayers, hugs, and condolences during a tragedy.
The IncRETTibles
— Jacqueline Babiarz

“Do we have chunky peanut butter?” It was an ordinary question my husband asked one afternoon last year. He was standing in the kitchen, scanning the pantry, and thinking about sandwiches. But his question stopped me cold. For 15 years, only smooth peanut butter filled our shelves. Not because we…

Whether we realize it or not, we carry someone through on a daily basis. A dad makes breakfast for his son to carry him through final exams. Teammates cheer from the sidelines to carry their team through to the end zone. A friend delivers coffee to carry a mom…
For parents of neurotypical children, summer should be easy, busy, and carefree. They might take their kids to the pool and watch them jump off the diving boards, zip down the waterslides, and splash in the water while parents sit nearby on lounge chairs. Parents might look out the window…
When Cammy was 14 months old, she and her cousin Olivia took a weekly toddler music class called Wiggleworms. I dreaded trying my best each week to put a smile on my face and pretend to have fun. I was puppet master to my 14-month-old, acting as her…
My family is overwhelmingly grateful for the COVID-19 vaccination. We can breathe a little more easily now that our daughter Cammy is protected. We are infinitely thankful for the dedication of the people in the scientific and medical fields. The COVID-19 pandemic has been extremely difficult on all…
I used to think the stages of grief — denial, anger, bargaining, depression, and acceptance — only…
I was 31 years old and eight months pregnant when our daughter Cammy, not yet 2, was diagnosed with Rett syndrome. Cammy’s grandparents picked her up for a sleepover, and that night, my husband, Billy,…
If you have a child that is diagnosed with a rare disorder, you’ll likely find yourself asking questions like, “How did I get here?” I’ve heard people say that “God only gives you what you can handle.” Well, apparently, God thinks I’m a badass, because…
Recent Posts
- What we’ve learned in 29 years as Rett syndrome parents
- Acadia to challenge negative opinion on Daybue approval in EU
- I’ve been on the lookout for the look that says, ‘Enough is enough’
- When the smallest things prompt the most poignant reflection
- Altered sensitivity to pain starts early in life in Rett mice: Study
- Rett syndrome linked to early disruptions in brain cell maturation
- Rett syndrome disrupts brain development in specific areas: Study
- European regulators unlikely to recommend approval of Daybue
- My daughter and her wheelchair taught me lessons in accessibility
- Visual problems in Rett may be reversible, mouse study shows