The service organization Best Buddies International has had a campaign going this month to “End the R-Word,” as the subject line in an email it sent out a few weeks ago put it. Best Buddies, which creates social and job opportunities for people with intellectual disabilities, has been conducting this…
An Excess of Lemons
— Neil Genzlinger
Neil Genzlinger and his wife, Donna Dee Genzlinger, live in New Jersey with their daughter Abby, who has been living with Rett syndrome for almost three decades. He retired in 2023 after 29 years at The New York Times and worked previously at The Washington Post, The Hartford Courant, and The Central Maine Morning Sentinel.
My daughter Abby has probably scored more runs than any player in the history of her baseball league. She’s also never won a game. She’ll continue to add to those impressive statistics next weekend, when the Miracle League of Mercer County, New Jersey, opens its spring season and…

My last job at The New York Times, where I worked in various writing and editing positions for almost 30 years before retiring in 2023, was as an obituary writer. Almost all of the hundreds of obituaries I wrote were assigned to me by editors, who reviewed the daily list…
Our daughter, Abby, who has Rett syndrome, just turned 29. It’s the kind of number that makes a parent think, “Can that possibly be right?” And, “Good golly, we’ve been doing this for a long time.” Abby may or may not care about birthdays, but if she does, she’s…
For more than a week now, our daughter, Abby, has been fighting off respiratory syncytial virus, or RSV, a rapacious bug that invades the respiratory tract. I gave it to her. It’s hard to watch her struggling with the deep cough, the phlegm, the runny nose. Abby, who is 29…
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- Boosting production of mutant protein causing Rett may be new treatment
- What we’ve learned in 29 years as Rett syndrome parents