If you have a child that is diagnosed with a rare disorder, you’ll likely find yourself asking questions like, “How did I get here?” I’ve heard people say that “God only gives you what you can handle.” Well, apparently, God thinks I’m a badass, because…
The IncRETTibles – a Column by Jacqueline Babiarz
Recent Posts
- What would fly for my daughter with Rett syndrome on Halloween
- ‘Rett-like’ label may offer little guidance for patients, study finds
- Taking care of a child with Rett is tiring, but not as much as having it
- Why my husband continues to fight for a cure for Rett syndrome
- ‘Alternative’ genetic cause for Rett found in case of Swedish girl
- How ‘Silent Angels’ and Julia Roberts put Rett syndrome on the map, part 2
- Targeting brain receptor yields little benefit in Rett syndrome mice
- How ‘Silent Angels’ and Julia Roberts put Rett syndrome on the map, part 1
- Supporters urged to ‘go one step further’ this Rett awareness month
- Extra attention from a color avalanche gave my daughter a reason to smile