Some days my 13-year-old daughter, Cammy, has what I call a “Rett day.” I can’t think of another way…
Jackie Babiarz
When Jackie Babiarz’s daughter, Cammy, was diagnosed with Rett syndrome at age 2 in 2011, Jackie became a point person for newly diagnosed Rett syndrome families across the country by providing guidance for marketing and fundraising, and by advocating for families with IEP meetings and transitions. Jackie also created a social media page with over 12,000 followers. She speaks to classes and schools about special needs, inclusion, and anti-bullying. Jackie is dedicated to helping families and strengthening communities. She and her family reside in Wheaton, Illinois. "The IncRETTibles" is her family's journey with Rett syndrome.
At Bionews we’re committed to providing the most accurate, relevant, and up-to-date reporting for our patient communities. Our goal is to ensure that everyone has access to disease-specific information that is both trustworthy and easy to understand. You can read more about our editorial policy here.
Articles by Jackie Babiarz
When assessing for developmental delays, doctors and therapists will check a toddler’s protective responses, such as instinctively outstretching the arms…
Everywhere we go, my 13-year-old daughter, Cammy, leaves an imprint. People gravitate to her. They want to help her…
Picture day at school always gives me anxiety for my daughter Cammy, 13, who has special needs. Rett…
While raising my 13-year-old daughter, Cammy, who has special needs, I eventually stopped caring about test scores, regardless of…
My dad, Joe Corrado, was my real-life Superman when I was young. He was larger than life, the smartest and…
When my oldest child, Cammy, was born on March 10, 2009, I imagined her at certain ages. I pictured…
In April, we will attend our fifth International Rett Syndrome Foundation (IRSF) conference since 2011, when our daughter Cammy…
As a parent, I consider myself well informed about the school system. I was a high school teacher before I…
When my 12-year-old daughter Cammy was diagnosed with Rett syndrome at 20 months old, we were told it’s a rare…