On my fifth birthday, I closed my eyes and wished for a two-wheeler with a banana seat and streamers coming…
Jackie Babiarz
When Jackie Babiarz’s daughter, Cammy, was diagnosed with Rett syndrome at age 2 in 2011, Jackie became a point person for newly diagnosed Rett syndrome families across the country by providing guidance for marketing and fundraising, and by advocating for families with IEP meetings and transitions. Jackie also created a social media page with over 12,000 followers. She speaks to classes and schools about special needs, inclusion, and anti-bullying. Jackie is dedicated to helping families and strengthening communities. She and her family reside in Wheaton, Illinois. "The IncRETTibles" is her family's journey with Rett syndrome.
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Articles by Jackie Babiarz
When your child is nonverbal and unable to use her body purposefully, it’s intriguing to open an email from…
The COVID-19 pandemic has changed many family dynamics. Those who used to travel or work in an office…
When our daughter Cammy was almost 2 years old, she was diagnosed with a rare disorder called Rett syndrome.
Today is my mom’s 78th birthday, and we are going to celebrate it the same way as if…
There are only a handful of people I describe as “someone you want on your team.” My 17-year-old…
Halloween should be fun and not stressful. However, for many years it was neither fun for us nor…
A big reason I write this column is because we are now the family I desperately wanted to…
When my daughter Cammy was diagnosed with Rett syndrome at 20 months, I thought about all the life…
At every single curriculum night, parent-teacher conference, and Individualized Education Plan meeting, I cry. But I’m not crying for…