Having a child with Rett syndrome who can’t communicate their needs, desires, and emotions as easily as a neurotypical…
Jackie Babiarz
When Jackie Babiarz’s daughter, Cammy, was diagnosed with Rett syndrome at age 2 in 2011, Jackie became a point person for newly diagnosed Rett syndrome families across the country by providing guidance for marketing and fundraising, and by advocating for families with IEP meetings and transitions. Jackie also created a social media page with over 12,000 followers. She speaks to classes and schools about special needs, inclusion, and anti-bullying. Jackie is dedicated to helping families and strengthening communities. She and her family reside in Wheaton, Illinois. "The IncRETTibles" is her family's journey with Rett syndrome.
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Articles by Jackie Babiarz
Caring for our late daughter, Cammy, often made my husband and me feel like we were sleepwalking through the night.
When I was growing up, my parents never made a big deal out of graduations. In fact, my brother was…
In 2015, when a girl with Rett syndrome passed away, we for the first time experienced the death of…
Rett syndrome robs a person of the ability to walk, talk, use their hands, and many other actions that…
My husband and I both grew up Catholic and attended Catholic schools from the first grade through high school. Both…
When my late daughter, Cammy, was diagnosed with Rett syndrome at 20 months old in 2011, we grieved the…
I think most children in the U.S. look forward to getting their driver’s license on their 16th birthday. I know…
Winters in Illinois, where I live, always feel so long. I’ve felt seasonal depression around this time for several…
As an adapted physical education teacher, I travel to multiple schools. This year, I’m visiting five schools, with students ranging…