On Dec. 13, it’ll be one year since our oldest daughter, Cammy, passed away from complications of Rett syndrome.
Jackie Babiarz
When Jackie Babiarz’s daughter, Cammy, was diagnosed with Rett syndrome at age 2 in 2011, Jackie became a point person for newly diagnosed Rett syndrome families across the country by providing guidance for marketing and fundraising, and by advocating for families with IEP meetings and transitions. Jackie also created a social media page with over 12,000 followers. She speaks to classes and schools about special needs, inclusion, and anti-bullying. Jackie is dedicated to helping families and strengthening communities. She and her family reside in Wheaton, Illinois. "The IncRETTibles" is her family's journey with Rett syndrome.
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Articles by Jackie Babiarz
When our oldest child, Cammy, was diagnosed with Rett syndrome in 2011, family, friends, and strangers rallied around us.
October is a triggering month for me. Grief punches me in the gut every day. In October of last year,…
Second in a series. Read part one. Cammy Babiarz took her first ride in a limo during her…
First in a series. My late daughter, Cammy, was diagnosed with Rett syndrome in 2011, when she was…
My late daughter, Cammy, loved “Sesame Street” because it was the world she imagined for all of us. Kindness,…
In her short 14 years on earth with us, my daughter Cammy taught my family and many others…
During all of my school-age years, once August came around, I was ready to go back. I loved summer, but…
After seven months, we finally have a memorial set for my daughter. Cammy passed away last December, at…
As a parent, some time-sensitive decisions and actions need to be made when your child passes away. Before the…