Grief is complicated. There’s no playbook, but I wish there were. I try to prepare myself for events that I…
Jackie Babiarz
When Jackie Babiarz’s daughter, Cammy, was diagnosed with Rett syndrome at age 2 in 2011, Jackie became a point person for newly diagnosed Rett syndrome families across the country by providing guidance for marketing and fundraising, and by advocating for families with IEP meetings and transitions. Jackie also created a social media page with over 12,000 followers. She speaks to classes and schools about special needs, inclusion, and anti-bullying. Jackie is dedicated to helping families and strengthening communities. She and her family reside in Wheaton, Illinois. "The IncRETTibles" is her family's journey with Rett syndrome.
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Articles by Jackie Babiarz
Most people from my parents’ generation remember where they were when President John F. Kennedy was assassinated in 1963. Sept.
Last week, I attended a Crisis Prevention Institute (CPI) training session at the school where I work, and I couldn’t…
I’m the youngest of six children: four girls, a boy, then another girl. (That last would be me.) I was…
Getting my hair washed at a salon is one of my guilty pleasures. It feels like I’m being pampered, and…
Having a child with Rett syndrome who can’t communicate their needs, desires, and emotions as easily as a neurotypical…
Caring for our late daughter, Cammy, often made my husband and me feel like we were sleepwalking through the night.
When I was growing up, my parents never made a big deal out of graduations. In fact, my brother was…
In 2015, when a girl with Rett syndrome passed away, we for the first time experienced the death of…
Rett syndrome robs a person of the ability to walk, talk, use their hands, and many other actions that…