As a parent, some time-sensitive decisions and actions need to be made when your child passes away. Before the…
Jackie Babiarz
When Jackie Babiarz’s daughter, Cammy, was diagnosed with Rett syndrome at age 2 in 2011, Jackie became a point person for newly diagnosed Rett syndrome families across the country by providing guidance for marketing and fundraising, and by advocating for families with IEP meetings and transitions. Jackie also created a social media page with over 12,000 followers. She speaks to classes and schools about special needs, inclusion, and anti-bullying. Jackie is dedicated to helping families and strengthening communities. She and her family reside in Wheaton, Illinois. "The IncRETTibles" is her family's journey with Rett syndrome.
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Articles by Jackie Babiarz
Self-preservation. Boundaries. Circles. Comfort zones. These are practices I’ve learned during grief therapy. I’ve been implementing these coping tools…
Not having to make every decision around accessibility and special needs is definitely taking time to get used to. It…
I’ve been in grief therapy ever since my oldest daughter, Cammy, passed away last December due to complications…
I’ve had several titles in my life: sister, daughter, mother, wife, teacher, and coach, to name a few. But the…
I’ve always been a shutterbug, someone who loves to capture moments with a camera. When I had my firstborn,…
Shortly after our daughter Cammy passed away on Dec. 13 due to complications of Rett syndrome, we were approached…
Since my daughter Cammy passed away in December due to complications of Rett syndrome, I’ve been experiencing…
Our local hospital, Northwestern Medicine Central DuPage Hospital in Winfield, Illinois, offers patients and caregivers the opportunity to nominate…
March 10, 2023, was the last time we would ever celebrate our late daughter Cammy‘s birthday with her. In…