Last fall, I purchased four tickets to see the hit musical “Hamilton” in Chicago in last December. My husband,…
Jackie Babiarz
When Jackie Babiarz’s daughter, Cammy, was diagnosed with Rett syndrome at age 2 in 2011, Jackie became a point person for newly diagnosed Rett syndrome families across the country by providing guidance for marketing and fundraising, and by advocating for families with IEP meetings and transitions. Jackie also created a social media page with over 12,000 followers. She speaks to classes and schools about special needs, inclusion, and anti-bullying. Jackie is dedicated to helping families and strengthening communities. She and her family reside in Wheaton, Illinois. "The IncRETTibles" is her family's journey with Rett syndrome.
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Articles by Jackie Babiarz
For 14 years, we had known this day would come, but we couldn’t possibly have fully prepared for it. On…
I never imagined we’d be in the hospital for a second consecutive holiday, but we were. Our oldest daughter,…
On Oct. 29, Cammy, our 14-year-old daughter with Rett syndrome, went to bed with a cold. She was…
A group of sloths is called a snuggle. A group of fish is a school. A group of…
Last weekend, my oldest daughter, 14-year-old Cammy, went to her first high school dance. Since she has Rett…
When I think about high school, I immediately think about friends, sporting events, getting a driver’s license, and dances. As…
Children with Rett syndrome typically go through a regression in their development between the ages of 6 and…
Summer is always hard on me. I don’t get much respite with a daughter who has Rett…
When my oldest, Cammy, turned 1 in 2010, I began taking her to various appointments to find a reason…