I tend to become quite envious when I see parents selling their no longer needed baby items. It means they’re…
Jackie Babiarz
When Jackie Babiarz’s daughter, Cammy, was diagnosed with Rett syndrome at age 2 in 2011, Jackie became a point person for newly diagnosed Rett syndrome families across the country by providing guidance for marketing and fundraising, and by advocating for families with IEP meetings and transitions. Jackie also created a social media page with over 12,000 followers. She speaks to classes and schools about special needs, inclusion, and anti-bullying. Jackie is dedicated to helping families and strengthening communities. She and her family reside in Wheaton, Illinois. "The IncRETTibles" is her family's journey with Rett syndrome.
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Articles by Jackie Babiarz
All my life I’ve heard inspirational phrases such as “Carpe diem” (“seize the day”), “You can’t take it with you,”…
For the past two months, I’ve been overwhelmed with thoughts of an upcoming milestone: My oldest, Cammy, will be…
Each year, we give out a Ripple of Hope Award at our annual fundraiser in honor of our daughter…
This Saturday, April 29, our family will host our 11th annual Cammy Can’s Cinderella Story fundraiser for the…
On my daughter’s birthday on March 10, news of the first-ever treatment for Rett syndrome broke. While it was…
In our special needs world, we sometimes get gut-punched. I felt this first when our daughter Cammy was diagnosed…
My daughter Cammy has profound special needs due to Rett syndrome, which leaves me terrified when someone else…
As a parent of a child with special needs as well as one who’s neurotypical, I have a lot…
As a rare disease family, we live in extreme peaks and valleys. The swings are swift, intense, and dramatic. Last…