As a rare disease family, we live in extreme peaks and valleys. The swings are swift, intense, and dramatic. Last…
Jackie Babiarz
When Jackie Babiarz’s daughter, Cammy, was diagnosed with Rett syndrome at age 2 in 2011, Jackie became a point person for newly diagnosed Rett syndrome families across the country by providing guidance for marketing and fundraising, and by advocating for families with IEP meetings and transitions. Jackie also created a social media page with over 12,000 followers. She speaks to classes and schools about special needs, inclusion, and anti-bullying. Jackie is dedicated to helping families and strengthening communities. She and her family reside in Wheaton, Illinois. "The IncRETTibles" is her family's journey with Rett syndrome.
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Articles by Jackie Babiarz
There are a few things I enjoyed about how people responded to the COVID-19 pandemic. I loved the…
Thanksgiving 2010 was the first emotional roller coaster holiday I experienced. Two days earlier, I had taken my 18-month-old daughter,…
Last in a series. Read part one here. On June 10, 2016, Cammy, my daughter with Rett…
First in a series. My dad absolutely loved listening to Andrea Bocelli, Frank Sinatra, and any musician of…
Since stepping back into teaching recently after staying home for 14 years to raise my two daughters, I tend…
Each year, about 40,000 people train for the Chicago Marathon, one of the city’s most popular events. Following…
Dressing a child with special needs can be a huge challenge. The child might have sensory sensitivities, low muscle…
I was recently reflecting on the moments when my oldest daughter, Cammy, who has Rett syndrome, transitioned to…
Teachers often spend their own money to purchase items their students need to flourish. According to a survey conducted…