When our oldest daughter, Cammy, was diagnosed with Rett syndrome in 2011, we knew that the only thing…
Jackie Babiarz
When Jackie Babiarz’s daughter, Cammy, was diagnosed with Rett syndrome at age 2 in 2011, Jackie became a point person for newly diagnosed Rett syndrome families across the country by providing guidance for marketing and fundraising, and by advocating for families with IEP meetings and transitions. Jackie also created a social media page with over 12,000 followers. She speaks to classes and schools about special needs, inclusion, and anti-bullying. Jackie is dedicated to helping families and strengthening communities. She and her family reside in Wheaton, Illinois. "The IncRETTibles" is her family's journey with Rett syndrome.
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Articles by Jackie Babiarz
Many people with Rett syndrome have issues with regulating their temperature, circulation, mood, breathing, and heart rate, which can…
Before this school year began, I attended a nonviolent crisis intervention training session, held by the Crisis Prevention Institute,…
I have two middle schoolers. My oldest daughter, Cammy, is in eighth grade. My younger daughter, Ryan, is in…
While growing up, I remember my dad mentioning a few times that he always wanted to be a teacher.
As a teacher, I’ve learned that not every child loves summer and holiday breaks. Not every child goes on…
My 13-year-old daughter, Cammy, was diagnosed with Rett syndrome on Jan. 7, 2011. It was the worst day…
One of the most draining aspects of our lives as parents and caregivers of someone with Rett syndrome is…
I have terrible memories of going to the dentist as a child: tightly closed eyes, the sound of drilling and…
Having a child with special needs means having additional worries, fears, and caregiving duties, especially during puberty. That’s a rough…