If you have a child that is diagnosed with a rare disorder, you’ll likely find yourself asking questions like, “How did I get here?” I’ve heard people say that “God only gives you what you can handle.” Well, apparently, God thinks I’m a badass, because…
Columns
Recent Posts
- How ‘Silent Angels’ and Julia Roberts put Rett syndrome on the map, part 1
- Supporters urged to ‘go one step further’ this Rett awareness month
- Extra attention from a color avalanche gave my daughter a reason to smile
- What it’s like becoming the point person of a club no mother wants to join
- Case of woman, 63, shows approved Rett therapy may benefit older adults
- ‘G’ is for grandparents: Remembering how my parents embraced my child
- Mouse study offers clues to Rett syndrome mutation differences
- Feeling adrift following the end of Camp Communicate
- Parkinson’s drug shows potential for Rett breathing problems in mice
- A casual chat about Rett syndrome, then a surprise in the mail