Reflecting on How I Got Here: Welcome to ‘The IncRETTibles’
If you have a child that is diagnosed with a rare disorder, you’ll likely find yourself asking questions like, “How did I get here?” I’ve heard people say that “God only gives you what…
The IncRETTibles
— Jacqueline Babiarz
When Jackie Babiarz’s daughter, Cammy, was diagnosed with Rett syndrome at age 2 in 2011, Jackie became a point person for newly diagnosed Rett syndrome families across the country by providing guidance for marketing and fundraising, and by advocating for families with IEP meetings and transitions. Jackie also created a social media page with over 12,000 followers. She speaks to classes and schools about special needs, inclusion, and anti-bullying. Jackie is dedicated to helping families and strengthening communities. She and her family reside in Wheaton, Illinois. “The IncRETTibles” is her family’s journey with Rett syndrome.
Featured Post
My daughter is becoming a very small fish in a bigger pond
For the past two months, I’ve been overwhelmed with thoughts of an upcoming milestone: My oldest, Cammy, will be graduating eighth grade at the end of this month. I imagine this transition is difficult for a lot…
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