Note: This column describes death and dying and may be triggering for some readers. Dec. 13, 2023, 4 a.m. I woke up around 4:17 a.m. to the sound of machines singing different pitches of beeps. I’d been in and out of sleep for the five hours I was actually able…
Guest Voices
Recent Posts
- The stranger on the beach who performed an act of real charity
- Imagining the moments my late daughter would now be experiencing
- Rett mutations may disrupt DNA-packaging proteins in nerve cells
- Lamenting a broken memento of a big night out
- Study lays groundwork for mutation-specific Rett treatments
- The one question I wish my nonverbal child could answer
- The most difficult conversation I have ever had
- Experts recommend Daybue as first-line therapy for Rett syndrome
- Guest Voice: Like stars, the grief of losing my sister is always present
- The spa, the snow, and the Make-A-Wish gift that keeps giving