In the spring of 2013, while visiting cousins, my daughter, Cammy, who was 4 at the time, saw her 10-year-old cousin Carly’s summer bucket list lying on a table. I read it aloud to Cammy. “Go to the beach. Go to a museum. Sleep over at my cousin’s house.”…
The IncRETTibles
— Jacqueline Babiarz
When Jackie Babiarz’s daughter, Cammy, was diagnosed with Rett syndrome at age 2 in 2011, Jackie became a point person for newly diagnosed Rett syndrome families across the country by providing guidance for marketing and fundraising, and by advocating for families with IEP meetings and transitions. Jackie also created a social media page with over 12,000 followers. She speaks to classes and schools about special needs, inclusion, and anti-bullying. Jackie is dedicated to helping families and strengthening communities. She and her family reside in Wheaton, Illinois. “The IncRETTibles” is her family’s journey with Rett syndrome.
Featured Post
My late daughter, Cammy, was diagnosed with Rett syndrome at just 20 months old in 2011. From that moment on, advocacy became part of our everyday life. Cammy’s journey taught our family not only about the challenges that people with disabilities face, but also about the importance of compassion,…
